Who we are
The Tyne and Wear ME/CFS Support group is a locally based independent, charitable organisation that is run by volunteers, the majority of whom have ME/CFS.
The group was founded in 1987 as an associate of a national organisation and was called “The Sunderland ME Support Group”. The founders, a small number of volunteer sufferers and carers, set out to provide support for the increasing number of people diagnosed with the condition.
In August 2000 the group re-launched and successfully attained independent charitable status and adopted the name “The Sunderland and South Tyneside ME/CFS Support Group”.
In March 2014 the group re registered with the Charity Commission as a Charitable Incorporated Organisation (CIO) and became “Tyne and Wear ME/CFS Support Group”. This name better reflects the geographical area now covered by the support group.
One of the largest support groups in the North -East we attract members from both the local and regional areas and as such offer an “open door” policy to any interested parties. Some members who are unable to attend our meetings stay in touch by telephone, fax, post and e mail and are kept informed through our quarterly newsletter.
What we do
Our principle objective is to offer help and support to those with ME/CFS and their families.
However, more recently the role of the group has widened as we felt that it was necessary to take a more pro-active and re-active line regarding the issues surrounding this illness. Therefore we now also try to inform and educate any interested party, including health professionals and the media, through the distribution of relevant information.
We have lobbied local Members of Parliament to influence a change in policies..
We hold regular monthly, informal meetings (except in December) in a comfortable, accessible venue and occasionally have invited speakers.
Membership is free and a newsletter is issued quarterly also without charge to group members.